www.MuntedPancreas.com Forum Index
Some Guidance for the use of the forum
Sun Feb 01, 2017 11:51 am
Sat Mar 03, 2017 1:29 pm
Moderators Shelley, Bill(OB)
Sun Feb 02, 2017 10:39 am
Certainly our life changed when Claire was diagnosed, and I guess it is still changed, though after nearly 18 years it's a bit hard to remember. When Claire went to kinder and school there was no expectation of an aid, and that worked out OK for us. Claire was on two mixed doses a day, so injections at school were not required, which made things much easier. There were times, however, when I needed to pick her up as she was very high or very low. I work about 2 Bendigo blocks from the school that both Claire & her brother attended, so I was able to get there quite quickly if required, which certainly helped both the school and me have lower levels of stress. I have been very lucky with my employer (Telstra) and my local management. Panic responses have never been a problem - mind you, I would have gone anyway and dealt with any fallout later, but there has never been any. My wife is a teacher, so she had far less flexibility that I.
In the meantime my belief is that my child will learn to live with and manage his diabetes. It will not be the totally defining thing about him. He has skills and interests and a life to live beyond his diabetes. And I have the same rules for myself. I will totally support and help and love him but I still have a life to live and while his diabetes is something I too live with all the time I will not let it be the main thing that defines me. That gives me the permission to do things outside worrying about diabetes. I can just be a Mum, I can pursue my career and support my husband's career and nurture our relationship (by going out without any kids occassionally). Elliot is my precious, precious boy but I am precious too.
I used to stress, but that was when we had to see the DEs and endos at every visit. A good HbA1c kept them off my back, but when it started going up they would feel the need to tell me how to fix it, even when I felt I didn't need it. I remember getting really annoyed once when we had a HbA1c of 7.5. The three previous ones had all been below 7, and I felt they could just have allowed for a bad few months, rather than immediately start telling me what I needed to change. Surely my track record showed I had some sort of idea about how to control her diabetes! They've been better lately...or maybe that's just because we don't really see the DEs much now. Luckily at our clinic visit last week the DE was nice and didn't hassle me when I told her the HbA1c of 8.1 was because I have mostly ignored her diabetes the last few months. I know exactly what needs changing and when she's high, but I haven't gotten around to it because I've been so busy with other stuff. She was content to let me deal with it and just told me to call if I needed help. August and September are big birthday months for us, and I have placed more importance on planning and perfecting an awesome pirate ship cake for my now 4 yr old than on Ally's diabetes. It was a work of art, and don't they say that you need to have suffering for good art...well the HbA1c was the thing that suffered