MuntedPancreas logo

www.MuntedPancreas.com

A place for parents and associates to discuss, learn, share and laugh about caring for children with Diabetes.
Please email Bill with any queries.

www.MuntedPancreas.com Forum Index

Articles

Hi All, this is my first time posting, so I hope I am making some sense with this. I'm the mum of a 12, nearly 13y old (YIKES!!) daughter, T1 since she was 8, pumping since 10y old. She has been very good with dealing with so many of the things that come with Diabetes and she hasn't had too many big problems along the way. But recently she has stopped testing her BGL at school, as a result her HBA1C which has always been between 7.4 and 7.8 has jumped to 8.8. She says she doesn't have time to test, but I'm sure its because she is getting sick of diabetes and being different from her friends. Also, she is going through puberty changes at the moment, so that is a lot to deal with as well. At least she does still bolus for food. It worries me because she is off to high school next year, and I don't think the teachers will be as on the ball as her primary school teachers. I know she avoids lows quiet well, but its the highs that may cause her problems now.

Also, the doctor at the clinic wants her to have a blood test to screen for complications. My daughter gets very upset at the thought of a blood test, I don't think its truly a phobia, but she certainly gets very anxious about it. I have taken her to see the psychologist at the clinic. He was not any help, and suggested we see an OT. Again, not much help as my daughter doesn't want to talk about it and gets anxious and upset. So I can't see the blood test happening anytime soon.

diabetic

I can sympathize wholeheartedly with you. My son, nearly 15 (dxd 10) is pretty much the same, hardly ever does BG tests..does bolus for the most part. His HBA1C went up to 9% this time. Having said that, his Paed isn't that concerned. Under 10% for teens is actually quite good apparently. I ride my sons back to test but with little result. I think it depends on the high school you send her to as to the level of support. My son gets none. No school nurse. They are pretty useless. I've taught him to be his own strong advocate if he needs to deal with it. Maybe find a school that has a good support network that you can work with. As the for the blood tests, I have no answer. It's a tricky one if she doesn't like needles. Have you tried getting her to to some relaxation techniques prior to having one? It's a hard road for them. Best of luck.

I have a 13 year old boy (diagnosed at 10). He is pretty good about testing etc but we still have to remind him occasionally. I found that at High School (he started this year) he really has to be independent. Despite me talking to school he has so many teachers they are not really tuned in. The office manager is great, though. In terms of the blood test - Elliot has to have one every year and he, too, is terrified. Nearly fainted one time (it's like they have to cope with finger tests and shots/pumps etc but the blood test sends them over the edge). I've just had to put my foot down about that one - it is not negotiable and not his choice as to whether or not he has it. I usually do some sort of bribe- we go for afternoon tea or something afterwards.

pills

My daughter is 10, dxd before the age of 2 and pumping since age 2.5. This year she has been shocking at testing and blousing as well. The one thing that has worked for us is a sticker chart (it's a bit more grown-up than it sounds!). She has a chart for each month. Each day she doesn't miss a test or a bolus she gets a sticker. At the end of the month if she's had less than 5 days without a sticker she gets a treat. Every couple of nights my hubby sits down with her and goes through the pump and meter and sees what's been happening and puts the stickers on. Since we started this she's been much better with her testing. When we first started the chart we allowed her to have 10 days without a sticker to get a treat, because otherwise she would've failed by the second week, but as she got she started being better with her testing and blousing we reduced the number of days she could forget, with the aim of having her never forget (yeah right!). So maybe try something like that.